Editorial Review:Product Description:Written by Dr. David Orenstein, director of one of the nation's leading CF centers, this one-of-a-kind guide offers clear explanations and real-world advice on cystic fibrosis and its management. Here you'll find practical and reassuring information on day-to-day concerns--school, travel, exercise, nutrition, medication--as well as on physiological effects, long-term issues, and prospects for a cure. Cystic Fibrosis offers straightforward answers to the questions most frequently asked by patients and families--what causes cystic fibrosis; how it affects body systems; what pharmacological, surgical, and physical therapies are most effective; what roles exercise, diet, and nutrition play; what complications can occur and how they can be managed; when and why a lung transplant should be considered; what psychological effect the disease has on the patient's family; and how the special needs and concerns of adult CF patients can be addressed. The Third Edition is updated and revised throughout.
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Customer Reviews
Average Rating:
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Best CF Book Ever
My daughter was diagnosed in 1997 at 1 month of age. Fortunately for our family we had the best specialist to help diagnose and treat her condition almost from day 1 of her life. And her doctor is none other than Dr. Orenstein himself (or just Dr. O to us). I can speak from personal knowledge that he is without a doubt the most informative doctor I have ever been around. He truly cares about the children in his care and he takes a proactive role in their health and well-being. His book is considered the CF bible by those in the know in the Pediatric Pulmonary field. As you read this picture a man with a bow tie and sandals explaining this to you. It is very easy to read and understand which when it comes to this disease is very important. I am happy to say that my daughter is almost 12 and thanks to Dr. O and his staff is in excellent health. If you know someone with this disease get them this book or better yet get it for yourself as well. Knowledge and understanding of the disease can really help.
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An Excellent Book on CF Care
This book accurately describes the disease cystic fibrosis (CF) and offers guidance in self-management on day to day problems. As a mother of a son who has CF, I highly recommend this book to any family dealing with CF.
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A must have if you are a CF Parent
I eagerly await the 3rd edition of this book. As a fully involved CF parent, my 8y/o daughter's care has benefited from my increased knowledge. I can form theories and question her caregivers from a more informed perspective and that is a win-win situation. If you have a child with CF, you should have this book. I call it the CF Bible.(Although encyclopedia would be a more accurate description.) I feel this book should be given to the parents of all newly diagnosed children.
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Finally, an update source of information!
Im a teenager and was diagnosed with CF when I was born in 1989.
It was recently that I wanted to do some more reading on my disease. I looked through some books and was shocked by what I was reading. As many of you know, the out-of-date books on CF can have some very frightening information, like death and more infections, and etc. It was I discovered this book that I was so much more relaxed about my condition. This book is up-to-date and tells the real facts about this disease. After reading this, my disease doesn't scare me anymore.
If you are a teen, like me, I suggest you read thid.
If you know anybody with CF, you should read this book or have them read this. Don't let them read those early books on CF with the grim facts...have them read this with the true and helpful facts.
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GREAT BOOK!
I really enjoyed this book. Anyone who needs to learn anything about Cystic Fibrosis should definitely buy this. It covers everything! I read the whole thing in 4 days and I understand so much more now.
